tag:blogger.com,1999:blog-8355201357234849984.post7552334008014091153..comments2023-05-14T07:55:15.792-04:00Comments on Looking for Answers for Leah: Back from the Paediatrician's OfficeKatehttp://www.blogger.com/profile/01443664163407137299noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-8355201357234849984.post-68054965407389890482011-07-19T01:44:04.547-04:002011-07-19T01:44:04.547-04:00Hey Kate, a few friends on Facebook suggested the ...Hey Kate, a few friends on Facebook suggested the following:<br /><br />This must be so devastating. My advice is to drop her family doctor and seek out the people that WILL help her little girl. She's the only one that can advocate for Leah :-( I think that GPs are way too lax. Mom's know when something is wrong. She needs to listen to that instinct and listen to the "frustration" she feels that nothing is being done...probably because her GP honestly doesn't know what to do, which is why he's minimizing it. I'm wondering if it's not a rare neuromuscular degenerative disorder. My heart really aches for them Pam<br /><br />Sounds a bit like juvenile myasthenia gravis or some similar autoimmune disorder...<br /><br />Lots of love to you, hun, I hope you get some answers soon. I can't imagine.Pamela Heasleyhttp://www.acornsoaks.comnoreply@blogger.comtag:blogger.com,1999:blog-8355201357234849984.post-13300541284654189942011-07-18T22:32:12.433-04:002011-07-18T22:32:12.433-04:00Keeping my fingers crossed, saying many prayers an...Keeping my fingers crossed, saying many prayers and keeping your family in our thoughts. Hoping you get some answers soon!Anonymousnoreply@blogger.com