We are having trouble with the VEEG unit, she can no longer unplug from it to use the washroom because it won't reconnect properly so we now have a commode chair in the room with us. The test is only designed for 4 days, so we are having trouble with the electrodes on her head. Between some sweating and her natural body oil accumulation over a week, the adhesive is starting the come away; this causes interruption in the readings and therefore is not a good thing. So I have re-wrapped her head a couple times, the first time, it eased it's way up and off. The second time, I used a lot more gauze and tape, and to ensure it really stayed, I also wrapped it up and over her head and under her chin! I don't want us staying over the weekend to be wasted because of faulty readings!
She has had an ECHO, ECG and has the holter monitor on. We have had a consult with a Cardiologist and at this point she doesn't believe that there is any cardiological issues.
Leah has been a very lucky girl, she has been visited by her best friend twice! Megan came again today to visit and she brought her sister. They are having a wonderful time playing board games, being silly and just playing.
Her daddy has come to stay overnight, her siblings have come for a visit and the girls are staying with me at Ronald McDonald house so they can spend some time with her every day. Even her Auntie Anne came for a visit and to spend the night with her. That was a real treat!
